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March was a whirlwind of packing, house repairs, and financial stress as it took most of the month to get the loan approval. In early April we loaded up the moving van and trailer for the first of what would eventually become three, nearly 1400 miles, drives north, where I drove the entire way each time. The first drive in early April was terrible, the short timeline and poor route meant that we spent a lot of the trip chugging 35mph up hill, adding hours to the trip. That first moving van was not great, it was slow, big at 26 feet, shaky, and the windshield started cracking a few hundred miles into the trip. We trailed our VW bus during this trip, after one stretch of mountains we found the wheel straps coming loose. Coming down through the narrow, winding mountain roads at 11pm at night was horrifying, but I went slow and safe. We didn’t arrive until 1:30am the morning of the closing for our new home.

First weekend in our new home was spent fixing windows, getting plumbing working right, and lots of cleaning. We had movers come to unload the moving van, most of which we put in a couple of rooms on the first floor or into the carriage house. This trip was mostly boxed up stuff and the tools and car supplies from our old garage. The next trip would be our furniture and the bulk of our stuff, we had to make sure the house was clean enough before moving it all in. A few days after we moved in we were flying back to Florida to prep for the second big trip.

The second trip was better. A friend flew in from out of town to ride with me in the moving van while my partner took our dog and drove the Rav4. My allergies do not agree with the Florida heat, I couldn’t wait until we could leave, but our departure kept on getting delayed, mostly waiting on someone to haul the bulk of the fleet north. It was not cheap, but I was able to get my Impala, Audi, and the Black Benz hauled up to the new home some 1300 miles away. During this trip we trailed the Tojan, same truck and trailer rental as before, except this time we were provided with a relatively new moving van. That moving van made the trip almost enjoyable. It had lane departure sensors, adaptive cruise control, and could chug 40mph through the mountains, took full advantage of its features. As we were leaving our old county, a storm came up on us, dumping heavy rain, thunder, and hail on us. Luckily we and the Tojan pushed through without major damage. We gave ourselves extra time and planned on possibly stopping a third night. My friend and I arrived on time, my partner arrived with our pup the next day.

The third trip happened almost a month later. We did not plan this trip out like we did the other two. We needed some time before going back to finish cleaning and packing our old house. We couldn’t put it on the market until more of the cleanup was done, so my partner and I came up with a plan where he flew back early and worked on the house. A few days later I flew down to join him and get the last of our stuff loaded into a final moving van, put our VW Beetle on a trailer, and try to clean up what we could. It was miserable due to lack of furniture (we had a broken sleeper sofa) and dwindling funds, but we completely filled up a 16′ moving van and had to leave a lot of unimportant stuff behind. That moving van was easier to drive thanks to its smaller size, but it needed suspension work. It shook, was hard to keep straight, and at one point it started to bounce really bad and I almost got motion sick. We were both exhausted when we arrived, but were happy we survived this final trip.

It’s been a little over a month since that final trip and I’m starting to feel less exhausted. The house is pretty comfortable now, but we still have a lot to unpack and many repairs that need to be done. While I’ve started setting up a new lab, it’ll be months before I’m back to working on projects like usual. The house is my main priority, it needs a lot of deferred maintenance and it’s obvious that people took advantage of the elderly owners with substandard quality work. We have a couple of small roof leak issues where flashing was not properly installed. We have many windows painted shut and all have broken sash cords. Most of these windows are also sealed shut with stick on foam insulation. Electrical is a mixed bag, lots of 60s/70s era electrical work where they ran new wires without grounding anything. It’s better than knob and tube, but still not ideal. Plumbing is mostly okay, although there’s a number of faucets where the hot or cold has low pressure, we have one small leak, and the first floor bathroom needs to be gutted to fix some wood rot issues.

It’s going to be an exciting summer!

Haven’t blogged since September, I’ve been focused on wrapping up projects, working on finances, and evaluating cities and neighborhoods. As of February we have a contract to purchase a historic home up in a city in south west Massachusetts. Currently working my way through the purchase and mortgage process as we’re planning to close in early April and move shortly after. Trying to wrap up work on my Mercedes, should have it running and driving, at least well enough to get on a trailer. Starting to disassemble the lab, already packed away dozens and dozens of extra and parts systems, won’t be long before the bench is clear. March is going to be very busy.

After being severely ill for a few weeks, it feels really good to be getting back on track with tasks and plans. I missed a week and a half of work but more than a few weeks of household chores and responsibilities. I made sure all the bills were paid and tried to keep up with some of my dishes, but I hadn’t been feeling well in weeks. Haven’t felt great since June when my ears started acting up. It looks like the acting up, the odd vertigo, anxiety, and ear pressure issues was labyrinthitis, an inflammation of the inner ear usually caused by allergies or infection. I was most likely recovering from it when I got really sick with that cold or flu or sinus infect, causing it worsen again. It may take weeks or months to fully recover, but grateful the worst of it is in the past.

There was a lot of catch up to do at home, but none of it has been particularly hard or take long. The front gardens looked much worse than they were, same with the yard in general. The house is dusty, but we clean it regularly and deep cleaning periodically throughout the year, so it hasn’t been hard to catch up with. My partner has been doing a lot of the dusting and vacuuming while I’ve been packing away extra stuff and cleaning up my office and lab.

One week of work then I have a couple days off to pack and prep for the road trip to New England. We’re taking that Rav4 and while it sees regular dealing maintenance, there’s some more non-dealer work that it needs. We had planned to work on it Labor Day weekend, but that was while I was still sick. Going to try to accomplish that this week or next before we leave.

I’m also hoping to get a little more work done on my TRS-80 Model 100 before leaving on the trip. Started looking into what it needed for repairs during one of my better sick days, got it apart this past weekend and finally inspected it the other night. Capacitors are starting to leak and damage solder. Need to be patient with this repair, make sure I clean and test thoroughly as I go through the board.

Not sure what happened, but over the last few weeks the tinnitus has faded. It never goes away, but it’s usually quiet. It usually stays quiet until the day after my allergy shot, when it starts to get loud, and tends to stay a little louder than usual, before quieting back down towards the end of the weekend. It also still spikes, but minor, seconds at a time, not severe like it was back in July and the vertigo issues have faded. Sleep is still rough, but I’m feeling better and regaining strength and stamina. Only major road bump in the recovery has been a small cold that my partner brought home from work.

I have seen doctors for the tinnitus and vertigo episodes, so far it’s not hearing loss related. It’s going to be hard to diagnose unless I can find a trigger, but this could’ve been a fluke or possibly brought on by anxiety. It might be weeks, months, or years before I have another episode, possibly never. I am prepared if another bad episode occurs, I know what happens, I know what helps, I just hope it doesn’t happen again. But like with previous intermittent health issues, I’m keeping a symptom journal. Most of my previous health issues were figured out thanks to patience, determination, and good record keeping, so will this.

For well over ten years I’ve dreamed of moving to the mountains, getting away from the heat of Florida. My partner also fell in love with the mountains after we starting vacationing in the Asheville area in 2018. That area became our dream, our goal. Since then we have watched the prices of real estate in that area skyrocket and become unaffordable. I started looking outside of the immediate Asheville area, which is more affordable. We’ve been working towards that goal, little by little, paying off debts, fixing our house, fixing ourselves, but things change, needs, wants, and goals change.

The social-political environment of the south has become unbearable for both of us. We are both tired of the near constant ignorance, hate, and hypocrisy. I genuinely fear for my well being, not immediately, but in the long run. I no longer want to live in the south, I no longer want to live somewhere that is actively trying to exclude groups of people. We’ll miss the winter weather and some of the people, but won’t miss the mediocre health care, fear, and hate.

Where will we go?

That is something that’s still in planning, but New England is most likely, possibly Massachusetts. High cost of living, but not as cold as Vermont, New Hampshire, or Canada, and the summers are wonderfully warm. Massachusetts actively welcomes LGBT, has many higher education institutes, and has excellent accessible health care services. Returning to New England also opens the possibility of re-visiting an old dream.

An old dream

A long, very long, time ago I had a dream to buy my own victorian home, a dream I put on hold when I moved back to Florida in 2004. It was a dream I’ve never fully given up on, but I was willing to leave it a dream so that my partner and I could enjoy our lives together in the Asheville area. There are victorians in the mountains, but finding one that’s affordable, in a safe area, and has good internet, is a challenge in the best market, and it might be years before these areas get anything better than slow satellite or dialup. It would be one of those dreams that maybe I would achieve later in life. Now the mountains of North Carolina are on hold, until a future when the social-political environment is less heated and violent.

My History

I grew up in a historic victorian neighborhood, helping my parents renovate and restore many homes in the area. I have had a passion for architecture since I was little and considered becoming an architect before settling on engineering. I love many different styles of architecture, there isn’t much I dislike, but my favorite is Victorian era, especially Queen Ann and Second Empire styles. After finishing my undergrad, while looking for a full time engineering job, I returned to my home city, moved back in with my parents, and worked managing restoration of another prominent victorian in my home neighborhood.

The work the team and I did on the house earned me an award from the local preservation trust. I would’ve loved to continue doing that work, but the pay was below what I could earn working tech support and living with my parents was starting to become a nightmare. I love my parents, but they’re conservative, narcissistic, and at the time, heavy drinkers. At this point I was willing to get a job doing almost anything computer related, engineering, tech support, web design, anything that would allow me to afford to move out of my parents house.

Putting dreams on the back-burner

Finding a job in the north east was not going well and the stress of living with my parents had become unbearable, so I left, returned to Florida where I had job opportunities. I was able to find a job, fairly low income compared to what my parents expected me to earn, but I could live on my own. I focused on my career, worked on my Master’s degree, focused on projects, but I’ve always longed for a historic home of my own. The part of Florida I’m in has a small number of victorians and older homes, but real estate prices were always out of my income range, it has worsened over the years.

I started looking towards the mountains of NC after a trip up in 2008 or 2009, housing prices were a little high in Asheville, but still affordable, if I could find the right job. Instead my career led me to South Florida and I moved further south, where real estate was even less affordable. I made the best of my time in SoFla, enjoyed some of my years there, but it seemed like my dreams were getting further away. The heat, cost of living, and needing to get squatters out of my house, pushed me back to Eastern Central Florida.

Never wanted to stay in Central Florida, but we are in a good location, able to fix our house slowly while paying off debts, and my partner has a good job in the area. Florida has never been ideal, environmental allergies and sun/heat related migraines are horrific at times, but I never feared living here until the last couple of years.

Why I fear the south

The last straw for me is the mounting attacks against transgender residents. Florida legislature, having already gone after trans children, is trying to institute rules and regulations which limit or eliminate transgender health care, a step in erasing transgender individuals, an act of genocide. They started by going after trans children and are now targeting trans adults. The state is pushing lies about trans healthcare and stoking fires of hate; misinformation like this has a body count.

I’ve received my first death threat a year and one half ago. It was an empty threat, sent out to many in my area, but it’s still unsettling. The social-environment environment of Florida has only worsened in the one and one half years since. I know many people with a variety of interests and beliefs, too many of them are supporting the hate, encouraging violence. These people are becoming more vocal, louder, and at times violent, claiming they are oppressed because they can’t impose their beliefs on others.

These people believe those who are different, who are queer in any way, are broken, sick, and in need of God. They believe there is a conspiracy to turn people gay or trans, to discredit any science that would prove their points, that science proving otherwise is doctored and fake, that there is a ‘new world order’ that democrats are forcing on the country, corrupting people. They are convinced that people choosing to be queer is due to brainwashing and peer pressure, and that allowing people who are trans to transition is a violation of their rights as a God fearing American. These people do not practice ‘live and let live’, they practice ‘my beliefs are your beliefs, even if you don’t want them’.

I used to believe that education could sway a person’s opinion, but that only works when people are willing to listen and learn, but it’s been some years since I’ve been able to have reasonable, rational, discussions. It feels like there’s a large number of people who reject science and research, claiming it’s biased and fake. These people cannot be reasoned with, they don’t want to believe evidence, instead cherry picking facts and at times denying reality. I already have to deal with this with my parents, I no longer have the energy to deal with others who are stubborn and ignorant.

Conclusion

I am ready to leave the ignorance and hate behind, to move back to an area that isn’t trying to genocide an entire minority group, to move back to a place where people are educated enough to be able to have educated discussions with minimal fear of becoming a target. I’m going to miss the warmth, but I’m ready to get the hell out of the south, find myself a nice victorian home to maintain or restore, set myself up a new lab, and focus on my family, job, and projects in peace.

Two or three weeks ago my tinnitus flared up and started spiking, a new complication adding to an already stressful summer. In the past the tinnitus was always intermittent, usually only noticed after rare spikes that would drown out the world for seconds or minutes, those always cleared up, this has not. During the day it is an annoying static, like a radio left on but not tuned to a station. At night it becomes seemingly dizzyingly loud, waking me from sleep, keeping me awake. I’m not sure why it suddenly flared up. Maybe stress and anxiety, allergies, hearing loss, or a mix, but it’s annoying and draining. I see a specialist in a few weeks, finding ways to cope with it until then.

I’ve completely changed my sleep habits, lighting, tried white noise (which drives me crazy), but part of the issue is my bedroom. It is near silent and has no outside windows, I’ll wake in the middle of the night, tinnitus screaming in my ear, my body spinning in a directionless black void, vertigo. We have a dim nightlight in the room that I’ve brightened up, reducing the severity of the vertigo upon waking, but it doesn’t quiet the tinnitus, or help when I close my eyes and experience waves of dizziness and nausea.

I’ve setup my guest room as a place I can go when I can’t manage the tinnitus in my master bedroom. It has an outside window letting in natural moonlight and which is also thin enough for me to hear the crickets and other night critters that live around us. Being able to hear things besides the tinnitus really helps ground a person. I’ve also found that classical music helps, I’ll put on one of the all classical NPR stations and try to focus on that. These are allowing me to get the bare minimum sleep I need to function.

I’m drained, achy, physically and mentally fatigued, thankfully able to keep my fibro from flaring up too badly. I’ve slowed down while working on projects, most of my energy is used up trying to stay functional for my job. Maybe the next few weeks leading up to the specialist appointment won’t be easy and there’s no guarantee that they can help, so I’ll continue to learn management techniques and I’m sure I’ll start feeling better soon.

Originally written back in November 2017, then never posted due to me getting sick.

 

As a Florida resident I have to keep an eye on potential hurricanes. Tropical storms have never been an issue, unless I need to drive through flooded roads, but hurricanes I don’t mess with. In the twenty years I’ve been in Florida I’ve seen quite a few cat 1, 2, and 3 hurricanes. I’ve had giant old trees fall yards from the house I was staying in, and see roofs ripped off buildings where I have worked. Hurricanes are stressful and post cleanup can be exhaustive, not a good combo when one has Fibromyalgia. While my thirty years old home is in a good location, on a good grid and my street has never flooded, none of that helped during Irma.

Hurricane Irma came through and it was not as severe as it was expected to be, but the local utilities haven’t been maintaining their lines. Before I moved to South Florida the utility lines were always kept clear, after moving back I discovered massive overgrowth across the entire grid. Two months ago I had the power company out to see about doing line clearings, it was scheduled for the end of September, but because of the hurricane they still haven’t done the clearing. Luckily during Irma the overgrowth didn’t damage the lines around my house, but did damage the lines further back in the grid. The power line damage from overgrowth caused us to be without power from before the hurricane hit us through the entire week.

The house itself took no damage during Irma, front yard looked untouched, yet the backyard looked like a tornado went through it. Trees and bushes in the backyard were all pushed westward, branches twisted around branches. My orchid tree took the most damage from the wind, it looks like half a tree now that all the leaves and branches are on one side of it. My lemon tree took almost no damage, although we lost most of the lemons. Most homes in the neighborhood had little to no damage, but there was plenty of yard cleanup.

First day after the hurricane was bearable. Without electricity we had no AC, but the weather had not warmed back up. It was fairly easy to start on limited cleanup and it seemed like I was going to be in good shape. On the second day the Florida summer heat returned, along with mosquitos. We had a tiny generator to keep our fridge running and a fan on us, even still the late afternoon left us overheated and exhausted. Thankfully I kept my Quell unit charged, so while the fatigue grew, the pain was kept managed.

The hurricane hit us on a Sunday night, power was restored to us Friday afternoon. I was struggling to function at this point, having slept only a few hours each night. When power came on, and stayed on, that gave me an adrenaline rush that allowed me put the well system back online, but not much more than that. Over the next few days I struggled to sleep, then struggled to stay awake. I managed to take the plywood off the windows, one window a day.

After that, it took over a month for me to recover. I struggled with sleep over the following weeks, each week sleep improving by a tiny bit. Each day I felt extremely drained, heavily foggy, struggling to do the most basic of chores. I could mostly keep up with work, but at the expense of house chores and personal projects. I flared up bad and was in a flareup for most of October. The flare would occasionally become extreme and my immune system was weak. Got sick a few too many times over the past month. Now it is early November and I’m starting to feel more like myself. I’m able to keep up with my chores and have resume work on my projects. I have good days and I have bad days, but the good days are starting to outnumber the bad days again.

Sleep is so important to manage fibro, the entire body weakens without enough of it. It was a hard recovery, something I hope to not have to go through again. If we get hit with another hurricane I have a nice generator ready to keep a couple of window units running.

 

Note: This was originally drafted in late April, 2017

I took a short break from my normal use of technology in March. It was a nice change as I’m often on the computer after work and the weekends. Unless I’m doing house or car repairs, I’m usually I’m studying new concepts, doing research, updating my Gentoo desktop, tinkering with one of my SBCs, or working on one of my personal projects. More recently I have gotten back into automotive work. Besides usual maintenance on my Audi, I’ve been working on putting my 1962 Impala back on the road, plus it was time to put my 1973 VW Westy camper bus back together.

Long before the fibromyalgia affected my life I was a very active person with multiple active projects. Late summer of 2006 a friend and I bought this rusty bus from a dude in Orlando, saving it before it went to scrap. We talked a lot about what we would do with the bus, cleaned it out a bit and tinkered on it. It had no engine, scary looking electrical, but was solid. A few years later I became sole owner of the bus and decided to take it apart. I wanted to teach myself auto restoration on it, then I could restore my Impala. At the time I was working on my masters degree and a very demanding job. It took a few years of very intermittent work for me to pull it apart with help from friends. During that time I obtained a couple of engines, a nice transmission, and various used parts, with the bus interior becoming furniture in the house.

I finished my masters degree and started work on the bus, just in time for me to experience bilateral carpel tunnel and guyon’s canal syndrome. I could barely use a keyboard much less lift a wrench. Months after surgery, in late 2011, I tried, but could barely work on the bus for 15 minutes before I would flare up. I gave up on the bus and focused on my newly acquired Benz. The Benz didn’t require the body and interior work I had planned for the bus.

In fall of 2013 I moved away and said bye to my bus, with the intention of handing the project over to someone interested in it. Life got in the way and the bus sat in the garage while the family renting my house became squatters. Fast forward to 2016, I end up moving back to my, discovering the bus and all its parts were left untouched; all I needed to do was body work and throw the bus back together.

It’s now 2017, late winter, and I need a break from Technology. The bus and all of its parts are taking up too much space, constantly getting it my way. It was time to start putting it back together. First thing was rust repair, which, because most of my body working tools, welder, and welding supplies were stolen, would mean rust removal with my die grinder and power drill, then fiberglass. While the fiberglass repairs were drying I started cleaning up and reassembling the interior, including stripping and refinishing all the wood panels. The more I worked on it, the more excited I became about it and the more work I found needed to be done. I’m dreading installing the electrical.

Now it’s April and I’m back to using computers. The bus I work on a few days a week, it’s coming along nicely. The break from tech was nice and recharging, I no longer feel burned out using computers after work. It also feels healthier to split my free time between house repairs, bus work, and computers. The house repairs are exhaustive and stressful, computers are my passion, but I’m on the computer 10+ hours nearly every day, cars are a nice break.

The initial infections that prompted my earlier post on infections have almost all cleared up. I started back on a healthy probiotic, very high in helpful bacterias. I’ve been slowly migrating my diet back to a healthier one, along with drinking more water. I had a major deadline last week, which caused me to start slamming back two energy drinks (decently ‘healthy’ ones) per day. Now that deadline is over I’m back down to no more than one a day. But during deadline week I contracted a nice sinus infection.

If I was the only one with the sinus infection I would blame it on allergies, but one of my close friends came down with it around the same time I did, her symptoms were less severe than mine, but a very similar timeline. I expect that it’ll take at least another week to clear this infection up. It is not helping that pollen is so severe there’s a warning not to go outside. I have serious pollen allergies and springtime has triggered sinus infections since I was a child.

The sinus infection itself has been mild, aches, clogged sinuses and sinus headaches, chills late in the day as I wear down, post nasal drip, etc. At first I made the mistake of treating this infection with Sinex nasal spray. I was stressed and exhausted from work and only cared about getting enough sleep to function the next work day. After a few days on Sinex, it stopped working, then I began to suffer rebound effects.

It has been a few days since my last spray of Sinex, my sinuses are feeling better each day, but prone to inflammation and becoming clogged, especially at night while asleep. I’ve tried a couple of decongestants and an antihistamine, but the sinuses are stubborn. They wake me up every couple of hours, sometimes clogged, sometimes draining. Each night a little less severe than the last, but each day I’m a bit more worn out.

There’s a home sinus treatment I used to make with apple cider vinegar, I need to make time to run out and buy some ACV so that I can make it again, plus it’s time for me to find my humidifier and see if that helps. I monitor my heart rate and whenever I get sick it rises by 5-10 bpm. When the infection starts to clear up the heart rate will begin to drop. My heart rate appears to have peaked yesterday, and should be going back down now. If the pattern holds true I expect this infection to last at least another week. In the meantime I’ll find some combination of home or pharmacy remedies that will help.